Baby Love.

Mallory loves her baby cousins. 

She obsesses over what Brogan and Cole are doing all the time. 

The poor boys hardly get any breathing room when we visit. 

Back to riding.

Riding sessions have started again. 

Thank goodness they waited till the 100 degree weather was over with.  

She rides at 3:30 so feel free to join us any Sunday till October 17th.

Good.

We are in a good place. Summer has been good. Mallory has responded well to her meds. She is sleeping well. The support we have at home is helping. Our trip to Denver is postponed till mid September. We have had some of Mallory's annual checkups done this summer and she is right on track.

Mal's New Ride

We recently got a tandem bike so that Mallory could travel for longer distance. You see, she loves her bike but has difficulty going for long rides. This posed a problem for our family. We wanted to still be able to go on long bike rides but didn't want to leave anyone behind.

Todd & Mallory took the tandem bike out for a ride and she loves it!

Been there.

http://71toes.blogspot.com/2010/05/zoo.html

This post by a fellow mother really hit home with me. I have experienced these same feelings. The fear of the unknown of raising a child with special needs so often creeps in and covers up the joy that can be found in every day.

Denver Bound.

We are headed to Denver. I made contacts with a family in Colorado that has had amazing luck with the care and treatment of their daughter with Smith-Magenis Syndrome. You see back in the 1980's, all the Smith-Magenis research started in Colorado. I took down the information for the Children's Hospital and it's team of specialists from this family and made some phone calls. Typically, when arranging appointments with specialists the wait can be months (we have waited up to 2 years), so I braced for the news of when Mallory could get scheduled. After completing a phone interview, we were promptly scheduled for July. This is very exciting because we will get to speak with people who have dealt with Smith-Magenis, who know Smith-Magenis, and can sympathize with what Mallory experiences every day.

Success....at last!

If I could turn cartwheels, I would.
That is how exciting the last few weeks have been.
Our frustrating, long battle with potty training has made a break through.
Mallory has turned a corner. She has finally decided at 10 years of age that underwear is the way to go.
Mallory has went 2 weeks with only 2 accidents. And let me tell you, She....is.....excited!
This, for me, is the BIG ONE. What a major accomplishment.