We are headed to Denver. I made contacts with a family in Colorado that has had amazing luck with the care and treatment of their daughter with Smith-Magenis Syndrome. You see back in the 1980's, all the Smith-Magenis research started in Colorado. I took down the information for the Children's Hospital and it's team of specialists from this family and made some phone calls. Typically, when arranging appointments with specialists the wait can be months (we have waited up to 2 years), so I braced for the news of when Mallory could get scheduled. After completing a phone interview, we were promptly scheduled for July. This is very exciting because we will get to speak with people who have dealt with Smith-Magenis, who know Smith-Magenis, and can sympathize with what Mallory experiences every day.
Wednesday, May 5, 2010
Denver Bound.
We are headed to Denver. I made contacts with a family in Colorado that has had amazing luck with the care and treatment of their daughter with Smith-Magenis Syndrome. You see back in the 1980's, all the Smith-Magenis research started in Colorado. I took down the information for the Children's Hospital and it's team of specialists from this family and made some phone calls. Typically, when arranging appointments with specialists the wait can be months (we have waited up to 2 years), so I braced for the news of when Mallory could get scheduled. After completing a phone interview, we were promptly scheduled for July. This is very exciting because we will get to speak with people who have dealt with Smith-Magenis, who know Smith-Magenis, and can sympathize with what Mallory experiences every day.
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