Mallory is an early morning riser. Some mornings as early as 3 a.m.
Most mornings by 5 a.m. Very rarely past 6:30 a.m.
We have read, researched, and tried a lot. We've got it managed to where Mallory gets the most sleep, however getting her to sleep later in the morning is nearly impossible.
Now before you start to wonder......Mallory has a reverse Melatonin cycle.
What puts us to sleep and keeps us there is the opposite for Mallory.
There are a lot of factors that effect her sleep and we attempt to anticipate them all.
She has just a few toys in her room and manages to get them out. She usually pulls all the clothing out of her dresser. Her armoirre stays locked at night (when i remember). If it's not locked, she will take all the clothes off her hangers.
The ideal thing would be to get up when Mallory does. We've tried that. It works for a little while, but wears on you. Our solution, is to contain her in her room.
I'm not a fan of closing the door completely. I want to be able to peek in on her and be able to hear her.
We had a friend cut her door in half. We then placed a lock on the door. This keeps her in her room until it's time to be up for the day. She does have a TV and books that keep her busy.
Most mornings are manageable with this system.
For more information on sleep in children with Smith Magenis Syndrome, check out http://www.prisms.org/
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