Thursday, June 30, 2011

Priceless.

We were blessed with a wonderful gift a few months ago.  A lady I've known just short of 2 years, gave Mallory an IPod Touch this spring.  She has listened to me vent, curse, and praise the raising of a child with special needs. She knows my struggles and Mallory's.  She knew what a blessing this would be.

She gets Smith Magenis Syndrome.
Mallorys struggles with a short attention span.  She gets impatient.  Waiting is hard.  She also cannot tolerate the focus of someone's attention being shifted away from her.  Especially when it gets diverted to mom.

This made doctor's visits unbearable.
Attending a program or sporting event was impossible.
It made a lot of things stressful for Mallory and our family.

The IPod touch for example:

  1. Kept Mallory's attention for 15 minutes so that I could talk with the orthopaedic surgeon about her problems with her left leg.
  2. Has allowed me to watch each and every one of Matthew and Hannah's ball games this summer. 
  3. It has made the long waits in waiting rooms for appointments enjoyable.
  4. When Mallory had her speech eval at Children's Mercy it was a lifesaver.  It allowed for me to talk with the speech therapist and really discuss Mallory's care.
  5. It even helps around the house, I can work outside with Mallory seated in a chair with her IPod touch.

It currently has music on it and some of her favorite movies. It is wonderful for her sensory issues.  She moves back and forth through songs only listening to the first 10 seconds or so of each. She scrolls back and forth through movies.  It would drive most of us crazy, but it is soothing to her mind and gives her the feedback she needs.

That way I don't miss moments like this.

Or this.

Thank you B.  We are so grateful!

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